How can we improve information for people affected by cancer? A national survey exploring gaps in current information provision, and challenges with accessing cancer information online

Hyatt, A; Shelly, A; Cox, R; Humphries, E; Lock, G; Varlow, M

Author(s): Hyatt, A; Shelly, A; Cox, R; Humphries, E; Lock, G; Varlow, M;
Details: Publication Year 2022-08,Volume 105,Issue #8,Page 2763-2770
Journal Title: Patient Education and Counseling
Publication Type: Research article
Abstract: OBJECTIVE: Despite improved recognition regarding the importance and association between provision of high quality information for people affected by cancer and improved outcomes and experiences; gaps and unmet needs are still reported. As oncology health information provision increasingly moves online, understanding how service users experience and manage misinformation is important. Determining patient and carer preferences regarding cancer provision is needed to address outstanding gaps. METHODS: This study utilised a purpose-built national cross-sectional survey distributed via social media to assess perspectives regarding cancer information in Australia. Quantitative and qualitative (open text) items assessed respondents' perspectives regarding current inforation preferences and gaps, and experiences with accessing information online. RESULTS: A total of 491 people affected by cancer completed the survey. Respondents highlighted a preference for information that better addresses the diversity of cancer experience, and is more timely and responsive to personal situation and care context. Despite increasing attention to health literacy standards, complex medical jargon and terminology remains prevalent. Many respondents have concerns about misinformation, and seek improved mechanisms or skills to assist with determining the trustworthiness and relevance of information found online. CONCLUSIONS: Survey responses identified current gaps in information provision for people affected by cancer. Personalised information in formats which are more flexible, accessible, and responsive to user needs are required. PRACTICE IMPLICATIONS: Education and resources to target and improve digital health literacy and combat health misinformation are needed. Novel solutions co-designed by people affected by cancer will ensure that information is provided in a manner that is relevant, timely, and personalised.
Keywords: Communication; Cross-Sectional Studies; *Health Literacy; Humans; *Neoplasms/therapy; Surveys and Questionnaires
Department(s): Health Services Research
PubMed ID: 35465976
Publisher's Version: https://doi.org/10.1016/j.pec.2022.04.009
Open Access at Publisher's Site: https://doi.org/10.1016/j.pec.2022.04.009
Terms of Use/Rights Notice: Refer to copyright notice on published article.

Creation Date: 2024-12-13 04:26:06

Last Modified: 2024-12-13 04:27:13